Articlehybrid2020

As if living like others: An idealisation of life in group homes for people with intellectual disability

24 citations0/0 files storedJournal of Intellectual & Developmental Disability

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Disability Rights and Representation Down syndrome and intellectual disability research Healthcare innovation and challenges

Abstract

Background: People with Intellectual Disability (ID) in Sweden should be enabled to live like others. This life like others is realised in group homes that have little in common with the typical home.Method: A reading of Appiah’s As if is used to discuss how people with ID are supported in Sweden. Current national data are presented within the framework of idealisation, the use of (useful) untruths to navigate a complex context.Results : Small group homes should allow people with ID to communicate their preferences and exert real influence over how support is provided. Instead, times of budget austerity require the efficient use of resources in ever larger settings, where normalisation of deviance is prevalent.Conclusions : Although the stated aim is that people with ID live like others, the idealisation is rather that they live as if they live like others. This is generally not discussed, possibly due to de-differentiation.

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2009Asylums: Essays on the Social Situation of Mental Patients and other Inmates 2009Receiving the Gift of Friendship: Profound Disability, Theological Anthropology, and Ethics 2016The Stupidity Paradox: The Power and Pitfalls of Functional Stupidity at Work 2017As If 2008Receiving the Gift of Friendship: Profound Disability, Theological Anthropology, and Ethics 2017As If: Idealization and Ideals 2017Debates about dedifferentiation: twenty-first century thinking about people with intellectual disabilities as distinct members of the disability group

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2021Forms of resistance in people with severe and profound intellectual disabilities 2022Social inclusion revisited: sheltered living institutions for people with intellectual disabilities as communities of difference

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