Article1998

Practising Partnership: Involving People with Learning Difficulties in Research

74 citations0/0 files storedBritish Journal of Learning Disabilities

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Disability Rights and Representation Down syndrome and intellectual disability research Mental Health and Patient Involvement

Abstract

Traditionally, research has been done on people with learning difficulties, rather than with them. However, attitudes to this issue are changing. On the one hand some people with learning difficulties are seeking more active involvement, while on the other both researchers and funding bodies are exploring ways to involve people more widely within the research process. This article gives examples of people with learning difficulties helping to set the research agenda; advising and assisting with research projects; undertaking research themselves; and being both the target of, and actively involved in, the dissemination of research. It concentrates on describing practical examples of involvement rather than the theoretical context and debates surrounding it.

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References

1995Listening to Children : Children, Ethics and Social Research 1992On the Road to Damascus: First Steps towards Changing the Relations of Disability Research Production 1998Some Ethical and Methodological Issues in Research with People with Learning Difficulties 1996Disability and the Myth of the Independent Researcher 1995Disability is Not Measles: New Research Paradigms in Disability

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2004Interviewing children and young people with learning disabilities*: guidelines for researchers and multi‐professional practice 2015Doing Research Together: A Study on the Views of Advisors with Intellectual Disabilities and Non‐Disabled Researchers Collaborating in Research 2001Ethics in quasi‐experimental research on people with severe learning disabilities: dilemmas and compromises 2008This is my truth, tell me yours: exploring the internal tensions within collaborative learning disability research 2016Facilitators and barriers to employment for people with mental illness: A qualitative study 2005Changes and choices: finding out what information young people with learning disabilities, their parents and supporters need at transition 2020Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”

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