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Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects
9 references·2 citing·47 second hop
Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects (2016)Using patient-reported outcomes and PROMI…Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 4: patient-reported outcomes can inform clinical decision making in chronic care (2017)Montreal Accord on Patient-Re…Reliability and Validity of Selected PROMIS Measures in People with Rheumatoid Arthritis (2015)Reliability and Validity of S…Evaluating PROMIS® instruments and methods for patient-centered outcomes research: Patient and provider voices in a substance use treatment setting (2015)Evaluating PROMIS® instrument…The PROMIS Physical Function item bank was calibrated to a standardized metric and shown to improve measurement efficiency (2014)The PROMIS Physical Function …The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative (2013)The case for an international…Patient-reported Outcomes (PROs) (2013)Patient-reported Outcomes (PR…ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research (2013)ISOQOL recommends minimum sta…Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations (2011)Implementing patient-reported…Adding The Patient Perspective To Comparative Effectiveness Research (2010)Adding The Patient Perspectiv…Patients and clinicians define symptom levels and meaningful change for PROMIS pain interference and fatigue in RA using bookmarking (2021)Patients and clinicians defin…Measuring positive health: for now, a bridge too far (2019)Measuring positive health: fo…Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items (2009)Item Banks for Measuring Emotional Distress From the Patient-Reported Outcomes Measurement Information System (PROMIS®): Depression, Anxiety, and Anger (2011)Diagnostic and Statistical Manual of Mental Disorders (2013)Standard set of patient-reported outcomes for personality disorder (2021)Review of Psychometric theory (2nd ed.). 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(1992)The MOS 36-ltem Short-Form Health Survey (SF-36) (1992)Validity of PROMIS physical function measured in diverse clinical samples (2016)A comparison of computer adaptive tests (CATs) and short forms in terms of accuracy and number of items administrated using PROMIS profile (2019)Floor and Ceiling Effects, Time to Completion, and Question Burden of PROMIS CAT Domains Among Shoulder and Knee Patients Undergoing Nonoperative and Operative Treatment (2019)A 12-Item Short-Form Health Survey (1996)Incorporating the Patient's Perspective into Drug Development and Communication: An Ad Hoc Task Force Report of the Patient-Reported Outcomes (PRO) Harmonization Group Meeting at the Food and Drug Administration, February 16, 2001 (2003)Comparative Effectiveness Research: A Report From the Institute of Medicine (2009)The Patient-Reported Outcome (PRO) Consortium: Filling Measurement Gaps for PRO End Points to Support Labeling Claims (2011)New Frontiers in Patient-Reported Outcomes: Adverse Event Reporting, Comparative Effectiveness, and Quality Assessment (2013)Family and professionals underestimate quality of life across diverse cultures and health conditions: systematic review (2014)Quality of life and pharmacoeconomics in clinical trials (1996)Methods to Explain the Clinical Significance of Health Status Measures (2002)The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008 (2010)Paediatric health-related quality of life: what is it and why should we measure it? (2016)A Core Outcome Set for Pediatric Critical Care* (2020)Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation (2005)Quality criteria were proposed for measurement properties of health status questionnaires (2006)The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes (2010)Core Outcome Measures in Effectiveness Trials (COMET) initiative: protocol for an international Delphi study to achieve consensus on how to select outcome measurement instruments for outcomes included in a ‘core outcome set’ (2014)A Standard Set of Value-Based Patient-Centered Outcomes for Breast Cancer (2016)COSMIN reporting guideline for studies on measurement properties of patient-reported outcome measures (2021)Experimental and Quasi-Experimental Designs for Research (1963)Internet, Mail, and Mixed-Mode Surveys: The Tailored Design Method (2008)Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support (2013)Sensitivity to change and minimal clinically important difference of the 7-item Generalized Anxiety Disorder Questionnaire (GAD-7) (2020)Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks (2007)Reporting of Patient-Reported Outcomes in Randomized Trials (2013)Framework and guidance for implementing patient-reported outcomes in clinical practice: evidence, challenges and opportunities (2016)Measurement invariance and general population reference values of the PROMIS Profile 29 in the UK, France, and Germany (2018)Truthfulness in patient-reported outcomes: factors affecting patients’ responses and impact on data quality (2019)Integrating response shift into health-related quality of life research: a theoretical model (1999)The Patient-Reported Outcomes Measurement Information System (PROMIS) (2007)Performance of the Patient‐Reported Outcomes Measurement Information System 29‐Item Profile in Rheumatoid Arthritis, Osteoarthritis, Fibromyalgia, and Systemic Lupus Erythematosus (2016)Validity and Reliability of Screening Measures for Depression and Anxiety Disorders in Rheumatoid Arthritis (2019)Measurement of health status (1989)Response Burden and Questionnaire Length: Is Shorter Better? A Review and Meta-analysis (2011)Developing an Initial Program Theory to Explain How Patient-Reported Outcomes Are Used in Health Care Settings: Methodological Process and Lessons Learned (2020)Placing patient-reported outcomes at the centre of cardiovascular clinical practice: implications for quality of care and management (2023)Recommendations to address respondent burden associated with patient-reported outcome assessment (2024)Health Measurement Scales: A Practical Guide to Their Development and Use (1989)Development of a new resilience scale: The Connor-Davidson Resilience Scale (CD-RISC) (2003)
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References

  • 2011Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations910 cited
  • 2013ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research847 cited
  • 2014The PROMIS Physical Function item bank was calibrated to a standardized metric and shown to improve measurement efficiency442 cited
  • 2013Patient-reported Outcomes (PROs)258 cited
  • 2015Reliability and Validity of Selected PROMIS Measures in People with Rheumatoid Arthritis219 cited
  • 2013The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative169 cited
  • 2010Adding The Patient Perspective To Comparative Effectiveness Research147 cited
  • 2017Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 4: patient-reported outcomes can inform clinical decision making in chronic care83 cited
  • 2015Evaluating PROMIS® instruments and methods for patient-centered outcomes research: Patient and provider voices in a substance use treatment setting37 cited

Cited by

  • 2019Measuring positive health: for now, a bridge too far53 cited
  • 2021Patients and clinicians define symptom levels and meaningful change for PROMIS pain interference and fatigue in RA using bookmarking32 cited

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