Article2004

Parent and Sibling Perspectives on the Transition to Adulthood

Cynthia R. Chambers · Carolyn Hughes · Erik William Carter

73 citations0/0 files storedEducation and training in developmental disabilities

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Disability Education and Employment Down syndrome and intellectual disability research Family and Disability Support Research

Abstract

The purpose of this investigation was to extend research on parent and sibling perspectives concerning the transition of family members with significant cognitive disabilities to adult life. Eight parents and eight siblings of high school students with significant cognitive disabilities completed questionnaires addressing transition outcomes. Results indicate that parents and siblings believe that they lacked knowledge with respect to post-school options, and parents report assuming more active roles in the transition process than did siblings. Although future employment and independent living were important to respondents, both parents and siblings anticipated that after high school, their family member with a disability would work in a segregated employment setting and would live in the parent's home. Implications for future research and practice are discussed.

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References

1994Exceptional Lives: Special Education in Today's Schools 2001Transition for Young Adults With Severe Mental Retardation: School Preparation, Parent Expectations, and Family Involvement 2002Exploring Perspectives on Transition of Youth With Disabilities: Voices of Young Adults, Parents, and Professionals 2001Post-secondary educational practices for individuals with mental retardation and other significant disabilities: A review of the literature 1995The Second Shock: A Qualitative Study of Parents' Perspectives and Needs during Their Child's Transition from School to Adult Life

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2020Future Planning Among Families of Individuals With Intellectual and Developmental Disabilities: A Systematic Review 2016Out of School and Into Distress: Families of Young Adults with Intellectual and Developmental Disabilities in Transition 2013The State of the Science of Employment and Economic Self-Sufficiency for People With Intellectual and Developmental Disabilities 2010Transition from Special Education into Postschool Services for Young Adults With Intellectual Disability: Irish Parents' Experience 2012Educators’ Beliefs and Practices About Parent Involvement in Transition Planning 2007“I Never Put it Together”: The Disconnect Between Self-Determination and Guardianship -Implications for Practice

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